Saturday, October 10, 2009

goodbye dear little boy

Our friends little boy passed away this morning. He fought hard and he fought for as long as he could. In July 2007 he was diagnosed with Chronic Granulomatous Disease (cgd). This is a rare immunodeficiency caused by a genetic mutation. It essentially made him very susceptible to infections as his immune system could not properly fight them. About a year and a half ago this little boy went to the hospital for a bone marrow transplant in hopes that this would enable his body to fight off all the bad stuff out there. They hoped to bring him home in 3 months time. Things didn't go as hoped and the months stretched on. We never met this little boy but I feel like I knew him. I read about his daily test results and procedures and knew if he had been able to sleep the night before. I rejoiced when he had a good day or when his sisters were able to visit him. He was a strong little guy and will always have a place in my heart.

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